 Medical
Homes in Arizona
This page is designed to keep you informed about events
and activities happening in Arizona that will help improve
access to medical homes for children with special health care
needs (CSHCN).
Click on a topic below to learn more about what's
going on in Arizona
Medical Home Initiatives
Adobe PDF 
This section
provides information on state medical home initiatives/programs.
States that are a part of the mentorship
network will have a "Promise to the State"
which outlines how they will achieve ensuring that all children
have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to
achieve and
measure
success for all CSHCN.
Arizona Medical Home Contact:
Name: Karyn Burstein PhD
Contact: Phone: 480-948-8783 | Email:
k.burstein@swifamilies.org
State Team: Roster
 The Mountain States Regional Collaborative (AZ, CO, MT, NM, NV, TX, UT & WV) was awarded a Medical Home Visting Professorship (2008)
Medical Home Visiting Professorship Pilot Program
The American Academy of Pediatrics National Center for Medical Home Initiatives for Children with Special Needs and the American College of Medical Genetics' National Coordinating Center for the Regional Genetics and Newborn Screening Service Collaboratives (NCC) in partnership with the ACMG and MCHB recently developed a pilot visiting professorship program. This program focuses on the specific topic areas of genetics and medical home and also establishing linkages between Regional Genetics and Newborn Screening Services Collaboratives (RCs) and AAP Chapters.
The Arizona Department
of Health Service has
been awarded an MCHB State Implementation Grant for Integrated
Community Systems of Services for CSHCN
- Abstract
Contact Person: Joan Agostinelli, Acting Office Chief, 602-542-2584
Goals and Objectives:
A major goal is
the creation a statewide forum where stakeholders from governmental
and state agencies, as well as local, and community level
providers, children and youth with special health care needs
(c/yshcn), and their families can review activities of the
various agencies and communities, plan needs assessments,
and study alternative funding for services for c/yshcn within
the state of Arizona. Several task-specific subcommittees
will conduct needs assessments, develop educational materials,
and provide input and evaluation of quality improvement
activities. Each committee will involve yshcn and their
families. Three groups will consist primarily of youth and
families who will be charged with integrating the family
perspective into every agency and community service organization.
The second major goal of this proposal is to study the impact
of providing screening and care coordination to different
clinical settings, including school-based clinics with the
intent of evaluating the cost-effectiveness of this service
in reducing redundancy, enhancing access, and ensuring higher
quality of care outcomes. The impact of insurance coverage
will be evaluated in each of the clinical settings. The
culmination of all of the activities will result in a white
paper that will be sent to the governor. For more
information about this grant and the program objectives
click here.
Arizona Statewide Medical Home Implementation Plan: Promise
to the State
Arizona Medical Home Web site - www.swifamilies.org/medhomeproject.htm
MCHB Medical Home Grant: Abstract
Project Period: 3/31/2002—3/30/05
Purpose: The purpose of the proposed project is to increase
access to medical homes for all of Arizona’s CSHCN
by developing a statewide medical home training and support
network and enabling 8 existing practices to become medical
homes.
Related Grant Initiatives
This section provides information on
current state grants that are working on medical home initiatives.
This includes the grant abstract as well as key contacts
for the grant.
Healthy & Ready to Work Grant: Abstract
Project Period: June 1, 2001 through May
31, 2005
Purpose: The proposed project develops,
implements and evaluates a transition model that addresses
core issues identified by the National Agenda, “Achieving
and Measuring Success for Children with Special Health Care
Needs by 2010”
- All youth with special health care needs (YSHN) receive
services necessary to make appropriate transitions to
all aspects of adult life, including adult health care,
work, and independence.
- Families and YSHN participate in decision-making at
all levels and are satisfied with the services they receive.
Hemophilia Grant: Abstract
Project Period: June 1, 2002 through May
31, 2005
Purpose: The purpose of this proposal is
to continue the family-centered, community-based comprehensive
hemophilia care supporting the successful existing structure
of Hemophilia Treatment Centers (HTCs) in MCHB Region VIII.
Partners in the State
This section provides information on who in the
state (individuals and agencies) are working together to
create medical homes for children.
American Academy of Pediatrics (AAP) Chapter:www.azaap.org/
American Academy of Family Physicians
(AAFP) Chapter: www.azafp.org/
Title V Block Grant to States
Title V of the Social Security Act is one of the largest
Federal block grant programs. It leads the nation in ensuring
the health of all mothers, infants, children, adolescents,
and children with special health care needs (CSHCN). Title
V is administered by the Maternal and Child Health Bureau
(MCHB) as part of the Health Resources and Services Administration,
U.S. Department of Health and Human Services.
Title V and Children with Special Health Care
Needs
MCHB Objective: Support development and
implementation of comprehensive, culturally competent,
coordinated systems of care for the estimated 18 million
U.S. children who have or are at risk for chronic physical,
developmental, behavioral or emotional conditions and
who also require health and related services of a type
or amount beyond that required by children generally.
MCH Contact
Sheila Sjolander, MSW
Chief, OWCH
Address: 150 N 18th Avenue Suite 320
Phoenix, AZ 85007
Phone: (602) 364-1419
| Fax: (602) 364-1496
Email: sjolans@azdhs.gov
Internet site: http://www.azdhs.gov/phs/owch/index.htm
CSHCN Contact
Joan Agostinelli
Chief, OCSHCN
Address: 150 N 18th Avenue, Suite 330
Phoenix, AZ 85007
Phone: (602) 542-2584
| Fax: (602) 542-2589
Email: agostij@azdhs.gov
Internet site: http://www.azdhs.gov/phs/ocshcn/index.htm
Early Hearing Detection &
Intervention (EHDI) Contact(s):
State
EHDI programs promote universal newborn hearing screening,
develop effective tracking and follow-up as a part of the
public health system, promote appropriate and timely diagnosis
of the hearing loss, prompt enrollment in appropriate Early
Intervention, ensure a medical home for all newborns and
strive to eliminate geographic and financial barriers to
service access.
Name: Smejkal Ruthann; Ph.D.
Contact: Phone: 602-364-1410 | Fax: 602-364-1495
| E-mail: rsmejka@hs.state.az.us
Name: Lylis Olsen; MS, CCC-A
Contact: Phone: 602-690-3975 | Fax: 602-296-0425
| E-mail: lylisolsen@msn.com
Name: Randi Winston; MS, CCC-A
Contact: Phone: 602-284-1091 | Fax: 602-296-0425
| E-mail: rlwinston@aol.com
State Genetics Program:
www.azdhs.gov/phs/owch/newbrnscrn.htm
Healthy Ready to Work: hrtw.org/about_us/proj_files/hrtw_az.html#proj
Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part
C of IDEA) is a federal grant program that assists states
in operating a comprehensive statewide program of early
intervention services for infants and toddlers with disabilities,
ages birth through age 2 years, and their families.
Name: Molly Dries
Contact: Phone: (602) 532-9960
| Fax: (602) 200-9820 | Email: mdries@mail.de.state.az.us
Web Site: www.de.state.az.us/azeip/default.asp
Section 619/Special Education
for ages 3-5 Coordinators:
This program provides free appropriate public education
(FAPE) for children, ages 3 through 5 years, with disabilities:
Name: Cheryl Blackwell
Contact: Phone: (602) 364-2727|
Fax: (602) 542-5404| Email: cblackw@ade.az.gov
Web Site:www.ade.state.az.us/earlychildhood/preschool/programs/presch/
State Interagency Coordinating
Council (ICC) Chairs:
The ICC advises appropriate
agencies on the unmet needs in early childhood special education
and early intervention programs for children with disabilities,
assists in the development and implementation of policies
that constitute a statewide system, and assists all appropriate
agencies in achieving full participation, coordination,
and cooperation for implementation of statewide system.
Name: DeAnn Davies, ICC Chair
Contact:Phone: (602) 546-0236 | Email:
ddavies@phxchildrens.com
Name: Maria Bravo, ICC Vice Chair
Contact: Phone: (520) 885-1528 | Fax:
(520) 745-1257| Email: mariabravo@mindspring.com
Resources/Documents
State Waiver Information:
www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid
agencies to apply for and receive permission from HCFA to
provide services not otherwise covered by Medicaid and/or
to do so in ways not described by the Social Security Act.
Most Medicaid managed care programs require Waivers. The
Waivers, which can differ greatly, are known by their numbers
(1115, 1119), or as home-and community-based, or as Katie
Beckett Waivers.
Educational Initiatives
This section provides information
on training initiatives on the medical home. Some states
will discuss their outreach projects in relation to physicians,
families, and the community.
No information is currently available for this category.
Screening
Initiatives
This section provides information on surveillance
and screening initiatives in the state.
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative
Links
- Newborn Screening State Contact Fact Sheet
The Arizona Department of Health Services (ADHS) Newborn
Screening Program announces upcoming changes in the scope
and range of screening services Arizona newborns will receive.
Passage of Senate Bill 1250 in April 2005 authorizes Arizona
to expand the panel of disorders for newborn screening and
begin follow up services for newborns with possible hearing
loss. For more information visit: www.azaap.org/General/ADHSnewborn.htm
Developmental Screening: PEDS
Effective January 1, 2006, AHCCCS is implementing the NICU
Grads program. The Governor's School Readiness Board Health
Implementation Team determined that AHCCCS should implement
a process to ensure that a formal developmental screen is
conducted during primary care EPSDT visits to identify potential
developmental delays of at-risk NICU graduates. Early intervention
ensures children enter school with the highest potential
for learning possible.
The Arizona Chapter of the American Academy of Pediatrics
(AzAAP) has collaborated with AHCCCS, through the Governor's
School Readiness Board activities the Arizona Early Intervention
Program (AzEIP), and the Arizona Department of Health Services
(ADHS) Newborn Intensive Care Program (NICU) to implement
a statewide developmental screening process. It was decided
that Arizona will use the PEDS Tool (Parents' Assessment
of Developmental Status, by Frances Glascoe), in this statewide
initiative.
For information on PEDS Online Training, visit the AzAAP
Web site at: http://www.azaap.org/general/peds.htm
State Resources on the Internet
Note: The information provided on the state pages was submitted
by the state medical home teams.As this is not an exhaustive
list, please let us know if you have additions for your
state resource page. You can contact us at: medical
home@aap.org.
Last Updated August 21, 2008
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