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Featured Information

Newborn Screening ACT Sheets for Pediatricians
www.acmg.net/resources/policies/ACT/condition-analyte-links.htm 
This website has a table describing the interrelationships between the conditions screened in newborn screening laboratories and the markers (analytes) used for screening. For each marker(s), there is 1) an ACTion (ACT) sheet that describes the short term actions a health professional should follow in communicating with the family and determining the appropriate steps in the follow-up of the infant that has screened positive, and 2) an algorithm that presents an overview of the basic steps involved in determining the final diagnosis in the infant.

US State Map with NBS Program Links

The National Birth Defects Prevention Network
http://www.nbdpn.org/current/resources/bdpm2008.html. 
The National Birth Defects Prevention Network's Education and Outreach Committee is pleased to present the 2008 Birth Defects Prevention Month Packet, focusing on "Preventing Infections during Pregnancy.

National Newborn Screening and Genetic Resources Center
http://genes-r-us.uthscsa.edu/resources/
Provides an Introduction and History of newborn screening.  A list of routine disorders and explanations are included. 

Newborn Screening Fact Sheets for Providers
Click here to view the Introduction
Click here to view the Fact Sheets
These newborn screening fact sheets were developed by the Committee on Genetics of the American Academy of Pediatrics with considerable assistance and consultation from many individuals. It is hoped that the information contained in these fact sheets will assist the pediatrician in understanding the individual tests, their characteristics, and their strengths and weaknesses.

Newborn Screening Fact sheet for Providers and Families
The federal Maternal Child Health Bureau, Health Resources and Services Administration and health literacy researchers at Louisiana State University developed the following materials to help health care professionals provide parents with easy to understand newborn screening information.

• Provider Material: Newborn Screening Disorders: What Parents Want To Know About Newborn Screening Disorders English|Spanish
• Parent Material :Newborn Screening Tests: These Tests Could Save Your Baby's Life

*This page includes resources that have compiled to date. If you would like to suggest additional resources to be added please sent them to screening@aap.org for review.