Council on Children
with Disabilities: Partners and Helpful Links
AAP State Chapters: www.aap.org/member/chapters.htm
Academy chapters are organized groups of pediatricans and other healthcare professionals working to achieve AAP goals in their communities. There are 59 chapters in the United States and 7 chapters in Canada.
American Academy for Cerebral Palsy and Developmental Medicine (AACPDM): www.aacpdm.org The American Academy for Cerebral Palsy and Developmental Medicine is a multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
American Academy of Physical Medicine and Rehabilitation (AAPM&R): www.aapmr.org The American Academy of Physical Medicine and Rehabilitation serves its member physicians by advancing the field of physical medicine and rehabilitation, promoting excellence in physiatric practice, and advocating on public policy issues related to disability.
Centers for Disease Control & Prevention
(CDC): www.cdc.gov CDC has remained at the forefront of public health efforts to prevent and control infectious and chronic diseases, injuries, workplace hazards, disabilities, and environmental health threats. CDC is globally recognized for conducting research and investigations and for its action oriented approach. CDC applies research and findings to improve people’s daily lives and responds to health emergencies.
Family Voices: www.familyvoices.org
Partnering with professionals and families to advocate
for health care services that are family-centered,
community-based, comprehensive, coordinated and
culturally competent.
Maternal and Child Health Bureau (MCHB): http://mchb.hrsa.gov The MCHB seeks a nation where there is equal access for all to quality health care in a supportive, culturally competent, family and community setting. The Health Resources and Services Administration's Maternal and Child Health programs promote and improve the health of our Nation's mothers, infants, children, and adolescents, including low-income families, those with diverse racial and ethnic heritages, and those living in rural or isolated areas without access to care.
National Center on Birth Defects and Developmental Disabilities (NCBDDD): www.cdc.gov/ncbddd
The NCBDDD promotes the health of babies, children, and adults, and enhances the potential for full, productive living. Work of the NCBDDD includes identifying the causes of and preventing birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.
National Center of Medical
Home Initiatives for Children with Special Needs
(National Center): www.medicalhomeinfo.org
The National Center Web site contains resources,
information, and tools on providing medical homes
for children and youth with special health care needs
(CYSHCN). By visiting this site you can learn more
about CYSHCN, the providers and families that care
for them, and the strategies that practices, communities,
and states are taking to improve the lives of CYSHCN
and their families.
Section on Developmental and Behavioral Pediatrics (SODBP):
www.dbpeds.org/
The Pediatric Development and Behavior homepages
is an independent Web site created to promote better
care and outcomes for children and families affected
by developmental, learning, and behavioral problems
by providing access to clinically relevant information
and educational material for physicians, fellows,
resident physicians, and students.
Section on Neurology: www.aap.org/sections/neurology The AAP Section on Neurology is dedicated to improving the care of infants, children, and adolescents by providing an educational forum for the discussion of problems and treatments related to neurologic problems in children.
TelAbility: www.telability.org
TelAbility is an innovative, community oriented,
interdisciplinary program that uses telecommunications
to improve the lives of children with disabilities.
Tourette Syndrome Association, Inc.: www.tsa-usa.org TSA is the only national voluntary non-profit membership organization in this field. Their mission is to identify the cause of, find the cure for, and control the effects of Tourette Syndrome. They offer resources and referrals to help people and their families cope with the problems that occur with TS. TSA raises public awareness and counter media stereotypes about TS. TSA’s membership includes individuals, families, relatives, and medical and allied professionals working in the field.
